Our house has SOLD!!! Well, kind of. :)
We have a contract on our house, which is set to close April 22nd. I'm pretty confident, now, that it will sell since the lady buying our house just closed on her house last week.
We are starting the process of fixing the things that she has asked us too in order to have a successful closing, which seemed way worse to us before Handyman Johnny put it in to perspective.
The next step/move will be into an apartment. Which sounds really stressful to me, but I'll be chanting for the next 6 months..." it will all pay off in the end."
We have signed a contract to start construction on our new house. Now that excites me so much. Just to know that we are blessed enough to be able to build our dream house and know that it will be ours and only ours. And we will be able to put some personal touches to it, so fun!
If any one is looking to get a good work out, we will need movers in a couple weeks. And we will pay with Pizza and beer, shoot we may even splurge and get craft beer!!! ;-)
Friday, March 27, 2015
Little D's Journey: Pt. Three
No better time to blog than in the a hospital waiting room!
Not sure how much detail I went into last time with Darcy's seizures, but we thought we had them under control due to medications until they showed their ugly face again last week. (grrrr)
They upped her meds, which seems to work until this week and then they started again. These seizures were definitely different from her last. Seemed like they were a little more intense, and I think as she is getting older she may unfortunately understand it more. (sadly enough)
Anyway, I contacted our amazing Neuro Assistant, Amanda, and she got Darcy in to get an MRI. Which brings the reason why we are sitting in a hospital waiting room right now.
We really just pray that this MRI will give some well needed answers to why she is having seizures and then we can stay on top of them.
I'm going to go ahead and give me Dr opinion, yeah I don't have the fancy letters after my name but I'll tell you something being in and out of appointments you begin to think you know all. (wink wink)
My opinion: Last week, St Patty's Day, they decided to dial her shunt down so that it would drain more of the fluid off her shunt and neck. Darcy has had some fluid buildup on her shunt and the tubing down her neck for some time, we blamed in on the horrible cough she had for 9 weeks!!!
So the seizures started exactly a day after the change in the shunt, therefore my thoughts are that with the less fluid in her little head gives the gray matter more room to communicate and when the gray matter communicates it then sparks up seizures. Hence my theory!
One awesome thing about coming back to the hospital, we got to see the amazing nurse (Lisa) that took such great care of our baby when she was 2 weeks old and received her shunt! Brought tears to my eyes, I'm such a softy anymore.
We were also introduced to another strong couple that is going thru the exact same thing we went thru 4 1/2 months ago. I hope we were able to give them some sort of comfort but I can totally relate to how stressful it is to have a baby going thru this and they didn't have the warning we did and haven't been able to process it for as long as did. I hope they find the comfort of our little babies journey and can feel comfortable to reach out to us if they need too. I wish we would have known someone else that went thru this when we started but we have had a great support group with her doctors and of course our friends and family!
I'll keep you all posted how the results turn out and then maybe they will be able to help Little D and this too will just be another story!
P.s. Darcy has been thru assessments for First Step and we have a meeting next week to get a schedule down for her therapy. She has already started to show signs of progressing so I am eager to get her therapy started and see how grows with their help.
Not sure how much detail I went into last time with Darcy's seizures, but we thought we had them under control due to medications until they showed their ugly face again last week. (grrrr)
They upped her meds, which seems to work until this week and then they started again. These seizures were definitely different from her last. Seemed like they were a little more intense, and I think as she is getting older she may unfortunately understand it more. (sadly enough)
Anyway, I contacted our amazing Neuro Assistant, Amanda, and she got Darcy in to get an MRI. Which brings the reason why we are sitting in a hospital waiting room right now.
We really just pray that this MRI will give some well needed answers to why she is having seizures and then we can stay on top of them.
I'm going to go ahead and give me Dr opinion, yeah I don't have the fancy letters after my name but I'll tell you something being in and out of appointments you begin to think you know all. (wink wink)
My opinion: Last week, St Patty's Day, they decided to dial her shunt down so that it would drain more of the fluid off her shunt and neck. Darcy has had some fluid buildup on her shunt and the tubing down her neck for some time, we blamed in on the horrible cough she had for 9 weeks!!!
So the seizures started exactly a day after the change in the shunt, therefore my thoughts are that with the less fluid in her little head gives the gray matter more room to communicate and when the gray matter communicates it then sparks up seizures. Hence my theory!
One awesome thing about coming back to the hospital, we got to see the amazing nurse (Lisa) that took such great care of our baby when she was 2 weeks old and received her shunt! Brought tears to my eyes, I'm such a softy anymore.
We were also introduced to another strong couple that is going thru the exact same thing we went thru 4 1/2 months ago. I hope we were able to give them some sort of comfort but I can totally relate to how stressful it is to have a baby going thru this and they didn't have the warning we did and haven't been able to process it for as long as did. I hope they find the comfort of our little babies journey and can feel comfortable to reach out to us if they need too. I wish we would have known someone else that went thru this when we started but we have had a great support group with her doctors and of course our friends and family!
I'll keep you all posted how the results turn out and then maybe they will be able to help Little D and this too will just be another story!
P.s. Darcy has been thru assessments for First Step and we have a meeting next week to get a schedule down for her therapy. She has already started to show signs of progressing so I am eager to get her therapy started and see how grows with their help.
Monday, March 9, 2015
Little D's Journey: Pt. Two
I started the first blog and new that there would be plenty more to come so I knew that it would be very fitting to title them into parts!
So I will start off where we left you with the last one.
After we visited with the Ped. Neuro for her seizures we brought it to his attention that we didn't feel like her vision was the best or to where it should be. She could hear, we could see that b/c she would jump at noises or even kind of look around when talking was going on, but she wasn't focusing on anything or anyone and if she locked in on you and you were too move she wouldn't follow you. Which that completely struck me as odd and I knew at this point of her age that she should be doing at least that. Once he did a few little tests on her he could see our concerns so he referred us to an Optometrist for tests and screening.
After calling in some favors to my FAVORITE Neuro PA we got in within a week after the referral!
The Optometrist was very friendly and starts to do her tests and understood our concerns, but in order to really look "into" the eye she had to put drops in to dilate them. So, the drops went in and then we had to wait 45 minutes for the drops to work.
Here is little D asleep while the drops were doing their job... she was so good. The Dr said it would sting a little and she pushed her brows down a little but not a peep out of her.
So I will start off where we left you with the last one.
After we visited with the Ped. Neuro for her seizures we brought it to his attention that we didn't feel like her vision was the best or to where it should be. She could hear, we could see that b/c she would jump at noises or even kind of look around when talking was going on, but she wasn't focusing on anything or anyone and if she locked in on you and you were too move she wouldn't follow you. Which that completely struck me as odd and I knew at this point of her age that she should be doing at least that. Once he did a few little tests on her he could see our concerns so he referred us to an Optometrist for tests and screening.
After calling in some favors to my FAVORITE Neuro PA we got in within a week after the referral!
The Optometrist was very friendly and starts to do her tests and understood our concerns, but in order to really look "into" the eye she had to put drops in to dilate them. So, the drops went in and then we had to wait 45 minutes for the drops to work.
Here is little D asleep while the drops were doing their job... she was so good. The Dr said it would sting a little and she pushed her brows down a little but not a peep out of her.
After all of that the Dr said that her eyes were in great health and the hydrocephalus had not damaged anything, phew a HUGE sigh of relief. The only thing she could see is that because of the brain abnormality the brain and the des weren't communicating as quickly as they normally would. But she could see that she was trying hard to focus and that she could see so that wasn't a worry. Now she is being referred to a program that does visual therapy to help her brain and eyes work together.
We finally got to sit with the administrator for this program called "First Steps" tonight and basically just get an idea of what we can expect. Darcy will have a Visual Therapist and a Physical Therapist come and assess her and see what kind of help she can benefit from and then after the assessment she can start the therapy sessions. I feel so relieved that we will have people along the side of us helping us get her to her milestones at such a young age. I truly feel that if we can catch everything at the beginning or even right as we see fit that she can be the best that her little head will let her. If she is anything like her sister she will be completely ahead of this and nothing will get in her way!
We absolutely love this little girl so much and she has already showed us how strong she is that it is unbelievable and really easy to say that she keeps us grounded, even at such a young age!!!
Darcy doing a great job with Tummy Time
Sunday, March 8, 2015
It's hard to be Four: the life of Ruby
We have exhausted all our patients and behavior books when it comes to dealing with a four year old, threes were a nightmare but fours seem to have their own madness.
When it comes to behavioral charts Ruby doesn't like to be at the bottom, even at school she is manipulating her way to the top... they are starting to see right thru her too!
We have a had a behavioral chart in our kitchen for quite some time now and it worked for awhile but then she messed more with placing Trey on all the appropriate behavior spots then really worrying if she was below good or above good for the day.
So, I decided to go back to my old method of stickers on the calendar... this time instead of it being a potty calendar it is now a "no-fit" calendar.
When it comes to behavioral charts Ruby doesn't like to be at the bottom, even at school she is manipulating her way to the top... they are starting to see right thru her too!
We have a had a behavioral chart in our kitchen for quite some time now and it worked for awhile but then she messed more with placing Trey on all the appropriate behavior spots then really worrying if she was below good or above good for the day.
So, I decided to go back to my old method of stickers on the calendar... this time instead of it being a potty calendar it is now a "no-fit" calendar.
If she had a good day then at the end of the day right before bed she was allowed to put a sticker on that day, and if she had a bad day she would get a red X and not be allowed to put a sticker on. Then at the end of the week we would do something fun or she could get a item of her choose and then at the end of the month we would do one BIG thing. Well, as you can see her month started out great, there were a couple touch 'n go days but we were able to quickly resolve issues do to the fear of the red X.
Week 3 wasn't the best week, it resulted in her first red X, which she was not at all happy about.
Which brings me to a great story: Eric takes the girls to school and the day of the red X he was walking with Ruby to her room and she stopped him and asked if they could "talk.". She asked how she can get rid of the red X? He then explained what happened and why she got it, and then told her to remember how sad she was that she got it and try not to get it again. Well, that evening she came home and took all her stuff to her room (like normal) but then stayed in her room longer than normal so Eric went in to check on her. He asked her what she was doing and she said that she "took care of the X." He looked at the calendar and it was wet with a more pink X now. She had used water and a wash cloth and wiped the red X as much as she could to make it look like it no longer existed. Needless to say she kept the red X and also go another one that week, but then finished strong the last week. We feel that it is working but we are also way to lenient and she probably really should have had a few more but if the fits aren't lasting as long then we feel like we are at least making progress, but this little girl is the strongest willed child I have ever me!!! Lord help us!!!
Because she had a good month, Eric took her to SkyZone and they had a blast... she loved it. Even though she was really supposed to go to Frozen on Ice but because of the weather that didn't happen. I thought telling her that we weren't going was going to be a disaster but she actually took it really good and was perfectly fine with the alternative.
For SALE!
We have been extremely busy the last month trying to get all the little things done so it was presentable/saleable! Seems like once you start something there is no end and you just finally have to stop. If you keep going then you will have done everything you wanted to do in order to just stay!
It's almost been a week that it has officially been on the market, the pictures of the house were taken this weekend and our first showing was today (Sunday). We are crossing all our fingers and toes and praying that our house can sell quickly so we can get the home that we have our little hearts set on.
Our realtor/friend told us a) don't look for houses until yours is under contract, b) definitely don't fall in LOVE with a home until yours is under contract and c) don't put a contract on a house until yours is under contract. Well... we are horrible listeners b/c we have failed at all three! The only problem is if someone comes around and wants to buy our "dream" home they can b/c we don't have the guts nor the financial ability to pay two mortgages so our contract will then fall. (sad face)
Gotta live by the motto, "if it's meant to be, it will be!"
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